Statement of ICPS Values
For information hands on assistance and advocacy
for over 17 million people and their families worldwide
Ever since it was founded in 1969 the International Cerebral Palsy Society (ICPS) has helped people help themselves practically almost everywhere in the world.
Worldwide there are at least 17 million people with Cerebral Palsy and although great advances have been made in the social acceptance and development of services for people with CP and their families in many countries, others still lag far behind or have not yet even reached the starting post. Cerebral Palsy is considered to be a curse in many parts of the world. Children are still being kept hidden from the community or placed as foundlings. Optimal medical assistance, habilitation and paramedical support is lacking in a large part of the world and levels of understanding, development and capability vary enormously from country to country.
The ICPS tries to establish that Cerebral Palsy is recognised, treated and respected as a group of disorders of the development of movement and posture, causing activity limitation, that are attributed to non-progressive disturbances that occurred in the developing foetal or infant brain. And that the motor disorders of Cerebral Palsy are often accompanied by disturbances of sensation, cognition, communication, perception, and/or behaviour, and/or by a seizure disorder.
CP cannot be cured, but we know at ICPS from our vast experience that it can be greatly improved by early diagnosis and treatment, proper medical support and education programmes tailored to those with special needs. For not only the child who has CP is affected, the condition deeply influences the total social surroundings of the child as well. When treating and supporting a child with CP it is imperative to look at the child not as a handicapped child, but as a child (playful, funny, interested, loving, naughty and/or cheeky at times, just like any other child) with wishes, dreams, hopes and – yes - a special child with special needs. This child and his/her family deserves full support with as many opportunities and rights as any other child and its family.
A large number of enquiries have reached the ICPS over the many years of its’ existence. It has always been the ICPS philosophy that it is supporting those with a wish to be helped. Looking at the needs, enquiries and possibilities of the questioner and taking that as a starting point ICPS members use their expertise to give hands on assistance and advice.
"If you want to build a boat, do not instruct the men to saw wood, stitch the sails, prepaire the tools and organise the work, but make them to long for setting sail and travel to distant lands" - Antoine De Saint-Exupéry.